The Kevin Patrick Hands to Angels Foundation was founded to support the ongoing research of rare genetic disorders and to assist families dealing with mounting medical bills and lost wages due to complications of a genetic disorder. It is a federally-approved non-profit organization, and was created in honor and memory of our son, Kevin. He was born in February of 2007 with an extremely rare genetic disorder, and despite the tough year he had in and out of the hospital,
As tough as his year was, we recognize how lucky we were to have him for the time that we did, and we are so thankful for every moment we were able to spend with him. It is our hope that easing some of the financial burden for families who are also coping with many hospitalizations and physician visits will allow them to enjoy their own precious angels a little more. We greatly appreciate you visiting this site and taking the time to learn about our very meaningful, yet relatively unknown, cause.
Hope you get your wink from Heaven today!
To support the identification and eventual prevention of rare, genetic disorders, and to provide financial assistance to families coping with the many complications of these disorders.
he captured the hearts of so many, with his coy smile, mile-long eyelashes and head full of hair. Kev fought like a trooper until the very end, but unfortunately our special little angel gained his wings into Heaven in February of 2008, just four days shy of his first birthday.
Kevin was born with an unbalanced translocation of his 2nd and 17th chromosomes, which basically amounted to a partial deletion of the long arm of chromosome 2, and a partial trisomy of the short arm of chromosome 17. For you super-technical genetic gurus, his karyotype was 46,XY,der(2)t(2;17)(q37.3;p13.1).
We found no other documented cases of this particular genetic makeup in the world, so we have been known to refer to it as The Kevin Younkins syndrome (ha!).
Some websites we found extremely helpful when
Kev was diagnosed:
Unique: The Rare Disorder Support Group
Chromosome Deletion Outreach
If you'd like to read more about Kevin's journey, please feel free to visit the online journal we kept for him: